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Advocacy

34 Disability Organizations write to MCFD

December 3rd, 2021

AutismBC

34 BC-based organizations wrote the following letter to Minister Mitzi Dean on December 3, 2021

December 3, 2021

 

Honourable Mitzi Dean

Ministry of Children & Family Development

PO Box 9724 Stn. Prov Govt

Victoria, BC V8W 9S2­­

 

RE: MCFD System Changes for Children and Youth with Disabilities

 

Dear Minister Dean,

We (the undersigned) cumulatively represent 34 BC-based organizations, as well as clinicians, researchers, and businesses with hundreds of years of combined experience supporting tens of thousands of children and youth with disabilities and complex needs. We are jointly writing this letter to express our concerns with the Ministry of Children and Family Development’s (MCFD) sudden decision to transform the existing support network for children and youth with disabilities to a system of generalist hubs while simultaneously eliminating individualized funding.

As a group, we are certainly pleased to hear that MCFD is committed to ensuring all children will finally have equitable access to disability supports and services—including those who live outside major population centres—and that this support will be available with or without a diagnosis. Collectively, we agree that the current system is in dire need of change, particularly when it comes to ensuring equitable and adequate funding for all neurodivergent and disabled children. There are currently far too many underserved individuals, families, and communities throughout BC. We share MCFD’s ambition to reach these populations with essential services that are necessary for all children, youth, and families in this province to thrive. 

Though we represent different disabilities and diverse approaches to supporting children, youth, and families, we are in broad agreement on what we believe are shortcomings in MCFD’s process and proposed plan for Family Connection Hubs.

There has been an acute lack of meaningful engagement and collaboration with our community regarding changes to the Children and Youth with Support Needs (CYSN) Framework. Although MCFD claims to have conducted consultations prior to announcing the new system, none of our organizations were invited to or included in these discussions in any meaningful way, if at all. The announcement of these major funding changes has caught the majority of BC’s disability community by surprise, as the recent statement from the Representative for Children and Youth also describes. As you know, the First Nations Leadership Council does not support the changes you have announced, nor the process you have undertaken. Consultation with Indigenous leaders and communities is necessary to reconciliation given the disproportionately high rates of Indigenous children and teens in MCFD’s foster care system.

There continues to be a lack of transparency about the changes to the CYSN Framework. The initial announcement included big promises but few details. Subsequent information releases have failed to reveal further insight into how the hubs will provide more support compared to the current system. Like Dr. Jennifer Charlesworth, we are especially concerned with the lack of clear plans to significantly increase funding or increase the number of service providers within the proposed hub model. Since the funding change announcement, all of our organizations have been inundated with questions from concerned parents and community members–questions that we can’t answer due to the scarcity of information from MCFD. Unfortunately, this lack of transparency and clarity continues even after information sessions were held this week for families, service providers, and sector partners.

Changes to the CYSN Framework should be guided by principles such as flexibility, choice, equity, access, cultural safety, trauma-informed practices, empowerment, and dignity. As disability organizations, we know from experience how vital it is for families to have agency and autonomy over the services their children receive and the supports they need. These benefits are a critical element that is missing from the proposed plan. For this reason, a hybrid model would better meet families’ diverse circumstances by allowing a variety of ways to access services, funding, and support, avoid disruption of already established supports and minimize the need to jump through unnecessary hoops or seek additional diagnoses. Rather than minimizing the role of diagnosis, waitlists for diagnostic assessment must be shortened to a maximum of three months and efficiencies in the public assessment system must be created. Additionally, eligibility must be streamlined for all disabilities, ensuring all children receive time-sensitive early intervention supports during their most critical years of development, even while waiting for a diagnosis. Families shouldn’t have to prove that they deserve financial, social, and political support for their disability-related needs, nor should they have to continuously prove need or eligibility when their disability is genetic or lifelong.

There is also much concern about the proposed needs-assessment tools. More robust consultation needs to be done to ensure that the tools being used to assess needs will not cause harm or exclude children and families from supports and services they need. We feel that assessors should not serve as gatekeepers but instead open the door to exceptional support for all children and youth who need it. We are concerned the hubs will not accomplish the latter.

Supporting all children will require accurate data on the number of children and youth that require supports. The province has not shared a true reflection of the population that will be served. While the government speaks of serving an additional 8,300 children, we know that is not an accurate number representing the need. Thus, service providers and modelling are needed to understand the full extent of this gap today and in the future.

Currently, there are not even enough service providers to meet the needs of all children and youth currently accessing CYSN services. We need more pediatricians, speech-language pathologists, occupational therapists, physical therapists, psychologists, behaviour analysts, and other support professionals who work directly with children with disabilities throughout the province. Without more of these essential professionals and access to services, especially in rural communities, supports will remain constrained with or without a hub system. Service providers with unique expertise in a specific disability or support need represent one of the province’s most valuable assets. These specialists have the knowledge and experience to offer targeted, individualized support that cannot be matched by a hub that caters to all disabilities. Families are deeply concerned that they will receive generic services at a hub that lack this depth of knowledge about their child’s specific disability. We also can’t assume that all service providers will be culturally safe for all children, youth, and families. Families must have the option to choose service providers to build on strengths and prevent harm and trauma. This may require them to be at arms-length from MCFD.

As concerned stakeholders, we share the objectives that the proposed MCFD plan intends to achieve, especially in terms of supporting families that are underfunded or completely without government funding. We particularly welcome the objective of guaranteeing support for those without a diagnosis. Therefore, a hub system may be an appropriate complement in creating a hybrid system that maintains individualized funding for the families for whom it’s already working and expands this option to include all families as a choice. To this end, MCFD must invest substantially more funding into the CYSN Framework to meet the needs of all children and youth with support needs and to avoid reproducing the pitfalls of the Ontario model, in which 50,000 children await access to promised needs-based supports.

We call on MCFD to immediately extend more funding to all children with disabilities, with or without a diagnosis. A failure to do so will continue to push unfunded families beyond their breaking points.

We also call on MCFD to immediately engage and collaborate with the undersigned in the restructuring and decision-making process of the proposed service system. 

Respectfully,

Wayne Leslie
Chief Executive Officer
Down Syndrome Resource Foundation

Julia Boyle
Executive Director
AutismBC

Deborah Pugh
Executive Director
ACT – Autism Community Training

 

Sergio Cocchia O.B.C., LLD (Hon)
Board Chair
Pacific Autism Family Network

 

Jordan Oliver
Co-Founder & Director
Northern Interior Autism Society

Miriam Elfert, Ph.D., BCBA
President
British Columbia Association for Behaviour Analysis

Sherri Palle
Founder & President
Sooke Autism Support Society

Brenda Lenahan
Founder and Director
BC Complex Kids

Vicky Ryan
Chair & Founder
Girls Club

Elizabeth Keres
Executive Director
Eureka Camp Society

Astrid Koenig
Executive Director
Building Bridges Community Support

Jemana Elsharkawi
Clinical Director
Salish Sea Behaviour Consulting

Joette Heuft
Executive Director
Square Peg Society

Shantelle Soto
Co-owner
Stepping Stones Therapy Inc.
& Aspire Preschool

Chelsea Ganam
WestCan Director of Operations
Monarch House

Hilary McClinton
Clinical Director
Coastal Ridge Consulting

Caitlin Goodsell
Co-Executive Director
Vela

Lila Mandziuk
Occupational Therapist
Pacific OT Services

Angela Clancy
Executive Director
Family Support Institute

BA Garreck
Coordinator
Autism Kamloops

Richard Stock, PhD, BCBA-D
Applied Behavior Analysis–Autism Department
Capilano University

Kim Thomas
Co-Executive Director
Vela

Tracy Humphreys
Founder and Chair
BCEdAccess

Heather Branscombe
Clinical Director and CEO
Abilities Neurological Rehabilitation

Cathy McMillan
Founding Member
Dyslexia BC

Joseph M. Lucyshyn, Ph.D., BCBA-D
Associate Professor
University of British Columbia

Nancy Walton
Executive Director
Autism Support Network

Shannon Muir
Owner-operator
Word of Mouth Speech and Language Services

Jesse Galvon Reid
President
Victoria Society for Children with Autism

 

Tamara Taggart
President
Down Syndrome BC

Jody Wiebe
Owner and Clinical Director
We Play Kids Sensory Gym and Therapy Centre

Dr. James Tanaka
Director
Different Minds Academy
University of Victoria

Victoria Coward
Director
My Little Steps Therapy Services

Rob Zoppi, President/Director
Autism Okanagan Association

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Cc: Hon. John Horgan, Premier and President of the Executive Council, and MLA for Juan de Fuca: [email protected] & [email protected]

Ms. Allison Bond, Deputy Minister, MCFD: [email protected]

Ms. Shirley Bond, MLA for Prince George-Valemount, BC Liberal Party Interim Leader and Official Opposition critic for Seniors Services and Long-Term Care, and Health: [email protected]

Ms. Karin Kirkpatrick, MLA for West Vancouver-Capilano and Official Opposition critic for Children, Family Development, and Childcare: [email protected] 

Mr. Trevor Halford, MLA for Surrey-White Rock and Official Opposition critic for Mental Health and Additions: [email protected]

Ms. Sonia Furstenau, MLA for Cowichan Valley, Leader of the BC Green Party and House Leader: [email protected]

Ms. Stephanie Cadieux, MLA for Surrey South and Official Opposition critic for Gender, Equity, Accessibility, and Inclusion: [email protected]

Ms. Jackie Tegart, MLA Fraser-Nicola Opposition critic for Education: [email protected]

Mr. Dan Davies, MLA Peace River North, and critic for Social Development & Poverty Reduction: [email protected]

Ms. Teresa Wat, MLA for Richmond Centre and a former member of the Select Standing Committee on Children and Youth: [email protected]

Ms. Melanie Mark, MLA for Mount Pleasant and Minister of Tourism, Arts, Culture and Sport: [email protected]

Ms. Brenda Bailey, MLA for Vancouver-False Creek and Parliamentary Secretary for Technology and Innovation: [email protected]

Mr. David Eby, MLA for Vancouver-Point Grey, Minister Responsible for Housing, and Attorney General: [email protected]

Mr. Ravi Kahlon, MLA for Delta North and Minister of Jobs, Economic Recovery, and Innovation: [email protected]

Ms. Selina Robinson, MLA for Coquitlam-Maillardville and Minister of Finance: [email protected]

Mr. Nicholas Simons, MLA for Powell River-Sunshine Coast and Minister of Social Development and Poverty Reduction: [email protected]

Ms. Anne Kang, MLA for Burnaby-Deer Lake and Minister of Advanced Education and Skills Training: [email protected]

Mr. Mike Farnworth, MLA for Port Coquitlam, Minister of Public Safety, Solicitor General, and Deputy Premier: [email protected]

Murray Rankin, MLA Oak Bay-Gordon Head and Minister of Indigenous Relations and Reconciliation: [email protected]

 

Download PDF version here: Disability Collective Letter to MCFD — Dec 3 


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