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Assessment

Autism Diagnosis for Adults

January 6, 2022

Autistic adults, professionals
Looking for Autism Assessment for Adults? 

Currently, in BC, there are no publicly funded systems for adults that are specifically designed to assess or diagnose autism; however, you could try a few of the following:  

  • Look at any private assessment options* that may be available. There is a significant cost ($3000-5000) for individuals to access a private autism assessment.  
    • With private assessment those who have health benefits you can access your Psychologist funds and use them to support fees. If one uses benefits near the end of benefits fiscal year, alongside assessment appointments, then carry over to next fiscal year, you can often then have most of your assessment largely covered by your medical plan.

We are aware of a few rare cases where some people have accessed additional funding support for an adult autism assessment. We list them here as alternative options with a disclaimer as these are much less clear pathways to assessment support:

  • Contact your local mental health services and inquire about any support services they can offer. Individuals receiving counselling from local mental health services can sometimes get an assessment paid for.   
  • Inquire at a local job placement agency—some have programs that assist with an assessment.   
  • Contact your local Community Living BC (CLBC) for office information and support.
  • Connect with peers that may offer support, lived experiences, or other possible options for an autism assessment.
  • A family physician or GP — could technically give a referral to a Psychiatrist who can bill MSP (BC Medical Service Plan) – However, AutismBC is not aware of any Psychiatrist in the province who feels trained or comfortable assessing or diagnosing autism in adults. 

 

How do I get an autism diagnosis as an adult?

 

Current Private Assessment Options in BC

For an up-to-date list of autism assessment providers, please reach out to us through our contact form. 

Note: AutismBC does not oversee Private Clinicians. We provide a list to assist with making informed decisions. Please do your own due diligence when choosing an assessor. This is not an exhaustive list.

Find a Registered Psychologist—BC Psychological Association (BCPA) 

 

Self-Assessment Tools/Screening Tools
Embrace Autism — Embrace offers the most widely used, empirically validated tests that can give an indication of whether you might be autistic. Please note that “no diagnosis is made based on the application of the screening tool alone. A formal diagnosis will require formalized assessment by a qualified practitioner in the context of an established clinical relationship” (Embrace Autism, 2021). Private virtual assessments are available for a fee, however, as Embrace Autism operates out of Ontario, your assessment results would need to be reviewed by a BC-Certified Psychiatrist, medical doctor or psychologist to be considered valid. Please consult with a BC-Certified Clinician before pursuing this assessment option.

Autism Canada—The Adult Autism Spectrum Quotient (AQ) Age 16 +. Please Note: This test is not currently mobile-friendly. Please take it on a computer or tablet with a larger screen.

The Diagnostic Assessment Process in BC 

There is no standardized process for diagnosing autism in adults. In BC, clinicians adapt the diagnostic measures that were initially designed for children when diagnosing adults, and there are four components:  

  1. The first part is a structured observation called the Autism Diagnostic Observation Schedule (ADOS). It is an interactive discussion, and diagnosticians observe how the individual behaves in social situations.
  2. The second part is Developmental History. Clinicians talk to a parent, a sibling, a spouse, or a relative to gather information about a person’s history. They may also try to gather other records, such as school report cards, videos, journals, etc.
  3. The third component is a series of questionnaires for the adult and an informant who knows the adult well. The clinician would ask more questions about the adult’s history, experience, what they remember from their childhood, and what is happening to them now in the workplace or at school.
  4. The fourth component is a thorough timeline of the individual’s vocational history. For adults, clinicians are looking to see their strengths and challenges in the workplace (Iarocci, 2021).
Why is adult diagnosis important? 

Currently, in British Columbia, there is no system tracking the number of adult autism diagnoses. About 2.5% of children in BC have an autism diagnosis, which translates to about 100,000 adults in the province who may meet the criteria for autism. However, a vast number of these adults did not receive a diagnosis as children due to their higher cognitive skills, gender issues and other mental health issues overshadowing what we now know as an autism profile. While some diagnosed adults may apply for Disability Tax Credit (DTC) and Person with Disabilities (PWD) status, the majority of adults seek a diagnosis for personal validation and self-understanding (Worling, 2021).

Why self identification is valid: 

Before diagnosis, the pathway to understanding is the first step in self-awareness. What happens when an adult simply cannot navigate the systems we have in place for diagnosis? Or are unable to afford private assessment? Maybe it just doesn’t feel safe for you? Unfortunately many of us may experience this as a reality. You are the only one who knows what it’s like to live life in your body and mind. While official diagnosis may come with many benefits, it’s not the only way to support yourself as an autistic adult. It’s perfectly valid to build accommodations in your daily life that help to support you. In fact you may realize you already built many supports in knowingly and unknowingly. Many autistic online support groups recognize self identified autistics and can be great places for gaining insight on ways to support yourself at home, at work and within your community. It can be painful and confusing to wonder if you’re “actually autistic” and to never officially have “proof.” Regardless of a diagnosis, everyone deserves to live in a way that feels authentic to them. If you relate to autistic traits, there is nothing wrong with caring for yourself in a way that supports your best health and needs. Read our article on self identification here.

Peer Connections 

Getting Together on the Spectrum: AutismBC — Connect with peers that may offer support, lived experiences, or other possible options for an autism assessment.

Autistics United Canada (AUC) 

Autism Canada: ASD Central 

Autistic Self Advocacy Network (ASAN) 

Autistic Women Victoria BC 

Square Peg Society 

Victoria Autism Meetup Group

Autistic Adults of the Okanagan

 

Mental Health Resources

Autism Mental Health Literacy Project (AM-Help) – Mental Health Literacy Guide for Autism to increase awareness and share knowledge around issues related to Autistic mental health.

Interior Health Authority: Mental Health & Substance Use Services 

Island Health: Mental Health & Substance Use Services 

Fraser Health Authority: Mental Health & Substance Use Services 

Northern Health: Mental Health & Substance Use 

Vancouver Coastal Health (VCH): Mental Health Services 

Autism BC Theme Resources: Autism Mental Health 

Autistic Lens:  Reasons Autism Self Diagnosis is Valid 

AutismBC Highlights: Natalie Engelbrecht and Embrace Autism  

In the News  

BC’s Autism Assessment Process is Slow and Expensive 

 


Looking for More Adult Resources?
 

Autistic Adulting — AutismBC Resource Blog

Housing Supports for Autistic Adults — AutismBC Resource Blog 

Autism BC Talks Adult Diagnosis  — AutismBC Information Session 2021

Autism Q&A: Transitioning into Adulthood — AutismBC Resource Blog 

Autism BC Talks with Community Living British Columbia (CLBC) — AutismBC Information Session 2021

Autism BC Talks Adult Diagnosis with Dr. Grace Iarocci and Dr. David Worling

 

 

 

AutismBC


Further Reading

Preparing for Adult Assessment

September 9, 2022

Autism assessments for adults are not as structured as those for children. The issue with this is that there is not a standard process for adults in BC. Here are somethings to know while preparing for adult assessment.

Ann’s Assessment Journey

January 15, 2022

“The Curious Incident of the Dog in the Night-Time” When I was 17 and a half, the way I saw myself (and the world) shifted […]

Reasons Autism Self-diagnosis is Valid

November 3, 2022

Many people believe autism diagnoses aren’t valid unless they’re supported by a doctor. However, self-diagnosis can be valid too. Here are some reasons to support self-diagnosis.